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For Rami

Rami

Rami

Administrator
Staff member
For Fibber and others...

Fibber,

I really appreciate your private encouragement with regard to my leg issues, and wanted to let you and others know I took your advice and insistence that I persist in finding a solution, and that my medical team at the wound care center has sent my information to doctors at the Mayo Clinic in Rochester, Minnesota to see if I am a viable candidate for venous reconstructive surgery, where they literally use stents to reconstruct your interior vena cava.

They are the only facility in the country that does this procedure, and according to them, they do this type of operation "all the time," which is mind-blowing to me. They also think they can "de-clot" and fix some of the main veins that are currently blocked. Most of the people who have had this surgery successfully are about my age, and since I do not have either heart disease or diabetes, I may be an ideal candidate.

If it works, I will be much more comfortable, have greater venous flow, more duration on my feet, be far less prone to skin ulcers, and I won't have to teach from a wheelchair anymore!

The information was sent out on Friday, so I am hoping to hear this week. If they do want me to come out for the surgery, I will let everyone know. Even if this particular type of operation doesn't work in my case, the fact they have advanced this far means that there will likely be a way to help me in the near future.
 
So good to hear that your venous issues may be treatable/reversible Andrew. Being pain free and mobile is valued all the more when you experience their absence. I hope that the clinic accepts you for treatment and that it is successful. It is a long road but it sounds like you have great support on the journey.
All the best.
 
Hope it all works out for you. Keeping you in my thoughts and prayers. Best of luck.
Bob
 
Ravenna said:
Being pain free and mobile is valued all the more when you experience their absence.
Click to expand...

Here's to you getting there Drew.
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Sounds very hopeful and promising. Hang in there! I'll definitely be thinking about you, and sending some positive waves!

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Rami......

... I was only the instrument of guidance, you made the decision. Glad to hear that you sought them out though.
That center does really amazing work and has some things in development that almost sound like science fiction. Hope it is successful and you can get legs up:biggrin-new::wavey:
 
Thanks for sharing Rami. I have been wondering about your "vein situation" and had not heard much. You just keep plugging. Tougher that me!
We are all with you. :encouragement:
 
Reply...

I was just contacted by the Vascular Interventional Department at the Mayo Clinic (in Minnesota) about the possibility of having venous reconstructive surgery there.
It sounds like I would be out there for a few days as an outpatient, then admitted for surgery and an overnight stay, and then have to stay a couple more days before returning to Massacusetts. (About a week, maybe eight days)


Still a lot of moving parts, including appointment making, insurance, and other considerations.


When I know more, I will let you know. Stay tuned...(Fingers crossed!)
 
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