• There seems to be an uptick in Political comments in recent months. Those of us who are long time members of the site know that Political and Religious content has been banned for years. Nothing has changed. Please leave all political and religious comments out of the forums.

    If you recently joined the forums you were not presented with this restriction in the terms of service. This was due to a conversion error when we went from vBulletin to Xenforo. We have updated our terms of service to reflect these corrections.

    Please note any post refering to a politician will be considered political even if it is intended to be humor. Our experience is these topics have a way of dividing the forums and causing deep resentment among members. It is a poison to the community. We appreciate compliance with the rules.

    The Staff of SOH

  • Server side Maintenance is done. We still have an update to the forum software to run but that one will have to wait for a better time.

Set Back In Deb's Recovery

Just received a pretty hard kick in the butt.....the Rehad Center that we want to get Deb into called. Insurance will pay up to 80% of the bill, up to a maximum of $100 per day. Room and board alone is $180 a day, and that does not include medications, therapies, nada.

So, the mad dash to find additional coverage for Deb begins. Tomorrow morning I have an appointment to apply for Medicaid for her.

OBIO
 
SHE FLIPPED ME OFF! In front of her mom! She was in the wheel chair from 6 am until nearly 7 pm.....and I was telling her that just shows how much her stamina and strength are building up. She looked at me, flipped me the bird, and says "That's what I think of your stamina and strength!" Oh, her personality has not changed on bit...darn it! She is still as rotten and pig headed as ever.....:jump:......wouldn't want her any other way.

She made me a card today...a belated Sweetest Day card. ON the outside it says "A Belated Sweetest Day Card" and on the inside it says "to the world's best bed pan putter on-er and taker off-er". This was all written by someone else...Deb told them what she wanted the card to say. By far the best part of the card is where Deb signed the card in the corner: Love, Debra.

OBIO
 
What a day! No sleep last night, left home at 9:30 this morning, sat in one Deb's morning Physical Therapy session. Met with Ned, the social worker, to fill out the application for Medicare coverage of Deb's Rehad Center stay, went to the Department of Family Services to get the application filed, then back to the hospital and sat in on Deb's afternoon Occupational and Speech Therapy sessions. Stayed to sit with her while she ate supper and made sure she is following the feeding rules (small bites, two swallows after each bite, putting the spoon down between bites to ensure she is not eating too fast, feeding to the left side of her mouth). Then waited for the nurses to get Deb to the potty and helped get her into bed and tucked in for the night. Just got home about 10 minutes ago. Now I am catching bloody heck from the dogs for leaving them alone for so long.

And I think I'm tired...I have no clue how tired Deb is. Poor gal has had a change in therapy schedule and her 3 to 4 o'clock break is gone...she now has therapy sessions starting at 8:45 am until lunch at noon. Then therapy starts back up at 12:45 and runs until 4. A one hour rest period until 5, then supper. Poor gal did not get into bed until nearly 7 pm. She barely stayed awake long enough to say good night, I love you.

OBIO
 
OBIO, sometimes words cannot display a person's true feelings. This is one of those times for me. My prayers are with Debra and you and your dogs too. I am praying for a miracle to happen for all of you. -- K.
 
If I may offer two suggestions: Take care of yourself, she depends on you keeping your strength and stamina and (2) keep your sense of humor. Sounds like she is. Sometimes I think the worst part of any illness is filling out the paperwork. Our prayers to both of you. :jump:
 
WOW...what a difference 2 days can make!

Thursday, Deb underwent a nearly 3 hour Neurological Psychology examination, during which the focus was her cognitive ability, reasoning, short term recall, long term recall, problem solving. And she blew the test out of the water. The Neurological Psychologist was totally impressed with the results of Deb's testing and said that Deb had the best short term recall she had ever seen in someone who had experienced a "major cranial trauma".

It gets better!

Friday: Deb called me shortly before noon to tell me that she no longer uses the wheel chair during the day. She used the walker to go to her various therapy sessions, to go to the bathroom. She does have someone with her during all of this...but that is a huge step forward. In physical therapy, she did walk 25 feet with no human assistance....just her and her walker!

During the afternoon Occupational Therapy sesssion, Deb mentioned that it was her sister Tina's birthday. So, Kay (Occupational Therapist) put Deb into a wheel chair for the long stroll to the gift shop so Deb could buy Tina a present. Deb has been charging people 50 cents per visit and had extorted nearly 20 bucks out of us in 5 or 6 days. She bought Tina a jar of Buckeye candy and a OSU Buckeye key chain. They took the gifts back to the Occupation Therapy room and Deb stood at the high table, without assistance or mechanical device, and tied the ribbons to the handles of the gift bag and wrote out the card. She STOOD on her own two feet.

Monday was her first day of eating all three meals...pureed foods and thickened liquids. She, after only four days of full meals, was moved to Mechanical Soft foods...which includes foods that are naturally soft (noodles, pastas, mashed potatos, bread) and meats that have been coarsely ground.

The PEG feeding (feeding tube in the abdomin) has been cut back to only 3 hours per night and her blood sugar levels have returned to normal. The endocrinologist was saying that Deb was diabetic, but we knew better. She was having very high blood sugar levels and was taking some serious amounts of insulin. As she began eating and getting less of the feeding tube goop, her blood sugars began lowering. Now that she is eating all three meals and nearly off the feeding tube goop, her blood sugars have all come back perfect the last 3 days and the endocrinologist now says that Deb is not diabetic afterall.

Her bowel movements are totally normal and totally under control. No more catheter, no more bed pan, no more incontinence.

Every day brings new break throughs....and they are coming faster. At this rate, she will be back to her normal self before long. The two big areas that are still way off are her left foot (still can not move it upwards, but she can move her toes upward a bit...which is a good sign) and the right side of her face (still paralyzed, right eye lids still not closing all the way...but these areas are controlled by the same nerve that controls swallowing...her swallowing is getting better, so it will only be a matter of time to allow the nerve to heal up and her facial control will return).

Monday will be her last full day at the hospital (Tuesday goes to the rehab center in the neighboring county/town...and boy is she anxious to be out of the hospital and to have a change of view). They are planning a pizza party for her...and she will get to eat pizza! They will have to cut it into smaller pieces and put it in the microwave with a dampened paper towel to soften the crust...but my baby will have her much longed for pepperoni, mushroom, green olive and banana pepper pizza!

OBIO
 
Great to hear Obio! But you had better look out now that she is getting better. Sounds like in a week or so she will be less focused on recovery and more focused on YOU. That can be good, you know, kissy-kissy hug-hug. It could also be challenging, "Tim when was the last time you did the dishes!" :costumes:
 
I am already ahead of that game. I keep the laundry done, the dishes done, clean one room every day if it needs it or not. I even ran the carpet shampooer yesterday...did the living room, office and hallway. Today I will do the kitchen and bathroom. The bedroom was done before Deb went in for surgery and since the bedroom has not been used since, it is still nice and clean.

The dogs are well cared for, as are the ferrets and the 3 fish tanks. The only thing that I will catch heck for is her Spider Plant...which I keep forgetting about when I am watering the house plants...it is looking a bit DEAD! It is sitting in a place that makes it easy to forget...and I forgot about it until the other night...9 weeks without water. Not sure it will bounce back...the rest of the plants look great. Well, other than my Bonzai "tree"...it simply did not get enough light as it should have been outside instead of inside by the kitchen window....but that is her fault. I told her it needed to be outside, but she wanted it inside so she could look at it more.

OBIO
 
I just have to chime in with a short note (have been off-line for a couple of months, but have been following your and Deb's progress via my cousin's reports). For me, this has been and continues to be a truly spiritually uplifting saga. Our continued prayers go out to you and Deb and I do have to add that you are a truly fine example of a husband and life partner ... an inspiriation to many, including myself.
 
You remember to take care of yourself, too, Obio.

JAMES

Oh, I am....as best I can. Sleep is a bit of a problem, but I get it when I can. I actually slept 4 or 5 hours last night...which is an improvement over the 4 or 5 hours in two days that I have been getting.

OBIO
 
How 'bout changing the name of the thread. Every time I read "setback in Deb's recovery" it gives me a momentary start until I remember that was a while back. Meanwhile, am delighted to read that she continues to improve and y'all both still have our prayers.
 
If I could I would change the name of the thread...and I had thought about starting a new thread on the Advances in Deb's Recovery.

Today, they took Deb totally off of the stomache feeding goop. She still has the feeding tube for receiving fluids, but that is all she gets through the feeding tube.

I sat with her while she ate supper. Grilled cheese sandwich, macaroni salad, butterscotch pudding and a halloween cookie my sister-in-law brought Deb from Buckeye Backery...the best backery in town. She did wonderfully!

I helped get her into bed twice...time to learn how to do that properly. And I lotioned her back, arms, legs and feet...that dry hospital air is rough on her skin.

OBIO
 
Obio,

I remember the moment that they were taking the exact same steps with my dad as he recovered. I have continued feelings of joy for both you and Deb as she recovers. :ernae:
 
Deb made it to the Rehab Facility in one piece yesterday. The place is well staffed, clean, and full of old people. Some younger folks there...but most are old.

Deb was pretty emotional as we left after getting her settled in, and even more emotional as I was leaving last night. And again this morning when she called me asking me to come get her and bring her home.

By the time I went to see her late this after noon, she was in better spirits after having a few short therapy sessions. The therapy teams spent the day getting to know Deb and finding out where she is in her recovery.

Once she is in the full swing of therapy, which will take a day or three for the various therapy teams to work up a schedule for her, she will be right as rain.

I had a big surprise just a little bit ago. I was getting paper work organized for the meeting tomorrow morning for Medicaid coverage for her time in the Rehab Center. Getting the three stacks of medical bills and insurance summaries organized into what has been covered and what we have to pay. Two pages that I came across nearly stopped my heart. Those two pages are for the BIG SURGERY...the actual 14.5 hour tumor removal surgery. It turns out that the insurance company DOES NOT cover cranial operations. Not at all. So, Deb and I have a $127,791.51 medical bill....with the due date being 2 weeks ago. :costumes::banghead::isadizzy::censored:

OBIO
 
Back
Top